eprintid: 22706
rev_number: 13
eprint_status: archive
userid: 1589
dir: disk0/00/02/27/06
datestamp: 2017-03-06 08:53:51
lastmod: 2024-05-11 07:52:55
status_changed: 2017-03-06 08:53:51
type: article
metadata_visibility: show
creators_name: Sparla, Anika
creators_name: Flach-Vorgang, Sebastian
creators_name: Villalobos, Matthias
creators_name: Krug, Katja
creators_name: Kamradt, Martina
creators_name: Coulibaly, Kadiatou
creators_name: Szecsenyi, Joachim
creators_name: Thomas, Michael
creators_name: Gusset-Bährer, Sinikka
creators_name: Ose, Dominik
title: Reflection of illness and strategies for handling advanced lung cancer - a qualitative analysis in patients and their relatives
subjects: ddc-610
divisions: i-910100
divisions: i-950900
abstract: Background: Lung cancer patients are often diagnosed in an advanced stage of disease. In a situation of palliative treatment, both patients and their relatives experience existential burden. Evidence suggests that multi-professional teams should deal with them as dyads. However, little is known about differences in their individual situation. The purpose of this study is to explore and compare reflections that arise out of the context of diagnosis and to compare how patients and their relatives try to handle advanced lung cancer.   Methods: Data was collected by qualitative interviews. A total of 18 participants, 9 patients diagnosed with advanced lung cancer (ICD- 10 C-34, stage IV) starting or receiving palliative treatment and 9 relatives were interviewed. Data was interpreted using qualitative content analysis.   Results: Reflection aspects were “thoughts about the cause”, “meaning of belief” and “experience of inequity”. Patients often experienced the diagnosis as inequity and were more receptive for believing in treatment success. The main strategies found were “repression”, “positive attitude”, “strong focus on the present” and “adjustment of life terms”. Patient and relative dyads used the same strategies, but with different emphasis. That life time is limited was more frequently realized by relatives than by patients.   Conclusion: While strategies used by relatives are similar to those of patients’, they are less reflective and more pragmatic in terms of handling daily life and organizing care. The interviewed patients were mostly not able to takeover these tasks. To strong was their belief in treatment success, their repression of the future and the focus on the present. This implicates, that in terms of end-of-life care, relatives are important to reach patients who are often not receptive to this topic.
date: 2017
publisher: BioMed Central
id_scheme: DOI
ppn_swb: 1656922304
own_urn: urn:nbn:de:bsz:16-heidok-227063
language: eng
bibsort: SPARLAANIKREFLECTION2017
full_text_status: public
publication: BMC Health Services Research
volume: 17
number: 173
place_of_pub: London
pagerange: 1-9
issn: 1472-6963
citation:   Sparla, Anika ; Flach-Vorgang, Sebastian ; Villalobos, Matthias ; Krug, Katja ; Kamradt, Martina ; Coulibaly, Kadiatou ; Szecsenyi, Joachim ; Thomas, Michael ; Gusset-Bährer, Sinikka ; Ose, Dominik  (2017) Reflection of illness and strategies for handling advanced lung cancer - a qualitative analysis in patients and their relatives.  BMC Health Services Research, 17 (173).  pp. 1-9.  ISSN 1472-6963     
document_url: https://archiv.ub.uni-heidelberg.de/volltextserver/22706/1/12913_2017_Article_2110.pdf